Category Archives: Uncategorized

The last several days have been quite a whirlwind of emotions. After my last post on Friday, we received a phone call from our pediatrician, Dr Kaufman late that evening. He called to inform us that he had been on the phone with a man from the Advocate branch of my BCBS HMO insurance andContinue reading “A Roller Coaster Ride”

Our follow up appointment on Monday with Dr Ruge went great. He was very pleased with how great Cade looked, how he was moving around, and how nicely his incisions were healing. He did say he needed to still take it pretty easy for another couple of weeks as he continues to heal. They placedContinue reading “The Holiday Week”

Hard to believe we have been home for a week already. That we have been living the unimaginable for almost 3 weeks. That Cade had brain surgery 2 weeks ago. It feels like that was so long ago and yesterday all at the same time. Our amazing little man has been feeling better with eachContinue reading “Our Weekend”

Yesterday was a hard day. Our hearts were heavier and sadder than we were prepared for when we woke up. We had our meeting with the oncologist, Dr Agrawal, at Lutheran mid-morning. We had briefly met them during our hospital stay and it was mentioned that the anticipated plan would be a mix of chemoContinue reading “Our Meeting with the Oncologist”

We have been home a few days now and it has been so great for Cade!! Sunday when we got home we spent a good amount of time outside, Cade slowly getting around with help. There was a moment that melted my heart and made me wish my phone was in reach as to captureContinue reading “Being Home”

Today is a day of joy and excitement…or at least it will be in a little bit when we ring the bell on our way out of the unit. Today we get to go home!Amen! This couldn’t have come at a better time as Cade was sitting on my lap earlier this morning crying andContinue reading “We are Going HOME!!!”

I have been meaning to share this and keep forgetting. If you’ve been following Cade’s story from the beginning, you know that Chris had a tumor when he was a child as well. Because of this, Chris has a scar up the back of his head.  Wednesday I had to get away for a littleContinue reading “Cade and Daddy Moment”

Today was overall a good day. Cade had some visitors this morning and my sister came as well and she & I left the hospital and walked across the street to eat at Brunch Cafe. It was good to get out for just a little bit. He went down for the quick MRI around noonContinue reading “Our Day”

It’s hard to believe how much time we have been here already. This week, Chris and I ironically were both on vacation. We had plans for a staycation to take the boys and do stuff around our area that we don’t often get to do between both of our schedules. Hard to believe that weekContinue reading “Saturday”

I am so behind on my updates! We have had a very busy last 2 days!! Cade has still been having issues with nausea and vomiting since surgery. They said this was a chance due to the fact that the tumor was growing on the vomiting center. However, it hasn’t seemed to improve much. TheyContinue reading “Progress Note ;)”