Category Archives: Uncategorized

Cade had a blast at home! He got to enjoy the Thanksgiving holiday in his own home, which we were so grateful for. Even better was that he got to be home for the mounds of snow that were dumped on us in Illinois. He had so much fun playing out in the snow runningContinue reading “The Final Round!”

Last week I got to come home for my usual “two days” as Rylan often refers to it. Mom, do I get my 2 days with you this week? He’ll ask me. Chris is off 2 days every week with his work schedule, and typically he will come up to the hospital and trade outContinue reading “Kids are Truly Resilient”

Things have gone much better so far this round. I almost don’t like saying it out loud, I find myself knocking on wood every time because I don’t want to jinx it. I looked back at my notes from last round though and he had began with the fevers and blood culture work ups beforeContinue reading “Trying to Enjoy Each Day”

We had another wonderful weekend at home. A lot of time and opportunities spent with family and friends, getting to play outside and enjoy the fresh air. Saturday we got to all be at Rylans last soccer game bright and early at 8:30am and it was a beautiful morning. Much warmer than the games wereContinue reading “The Show is Back on the Road”

We have been home for over a week now. Cade has been loving every minute. He has been running around the house playing with Rylan. Building blocks. Riding the gator and the Jeep outside. Running through the house playing “hunting” (thanks dad! Haha) Sometimes I get asked to be the deer. I get tired ofContinue reading “The Waiting Game”

A crappy week it was. Literally. Cade was already to and from the PICU and then positive for enterovirus. Then come Thursday we found out that to our complete shock and disbelief, he had tested positive for a GI bacteria called Colostridium Difficile. Aka as Cdiff. Due to the fevers that had started the weekContinue reading “A Wonderful End to a Crappy Week”

We are back in our room on the oncology HOT unit. Yesterday afternoon both the PICU and oncology doctors felt that Cade looked good compared to the day prior. They were happy with his progression and that they were able to get him back on oral Tylenol and see the fever remain controlled. Had heContinue reading “Room Sweet Room”

Shortly after I posted my update yesterday, things took a turn for the worse. Cade woke up from his nap on the couch around 11:30 and was fussy and wanting me to hold him. So I moved him over to sit with me on the reclining chair and got him all situated on top ofContinue reading “Feelin’ Hot Hot Hot!”

First and foremost, I have to say that we made it through our week of baths and endless laundry!!! Whooo hoooo! We celebrated with a lot of splashing and a high 5 during our 21st and final bath of the week on Friday night. I’m seriously not making this kid get in the bathtub againContinue reading “Prayers for Healing in Week 2”

Cade started his heavy dose chemo bright and early Saturday morning. He got all his anti-nausea premedication and was started on his 1st chemo drug by 7am. Carboplatin. It ran over 4 hours and then was immediately followed by the 2nd drug of the course called Thiotepa, which ran over another 4 hours. Sunday wasContinue reading “Heavy Chemo Round 1”