Author Archives: candocade

Most of you already know, but for those of you who do not, let me start this entry out by saying that his MRI on January 9th was CLEAR!! It showed no evidence of new or existing disease. Thank you Jesus! Thank you everyone for all of your prayers for him. He did very wellContinue reading “Starting to Feel Like Himself Again”

We have been home for two weeks now, and what a wonderful two weeks it has been. Cade is definitely enjoying being home. Running around and being free to do whatever and go wherever he wants to. We have taken advantage of the fresh air as much as possible playing outside, riding the gator around,Continue reading “Enjoying Home”

Wednesday morning Cade was back on the board with a white count of 0.2 and an ANC of 64. I had decided not to give Ativan at all over night and he did great. I feel like his cells started to come in and healed his gut from the mucositis first and then they beganContinue reading “The End of the Tunnel”

Our two rest days were spent getting fevers and being started on antibiotics. I was disappointed because in rounds on Friday they had just said that Cade could take a day pass both Saturday and Sunday since he had nothing going on either day. Then in the middle of the night Friday he spiked aContinue reading “Counting Down for the Counts”

Cade had a blast at home! He got to enjoy the Thanksgiving holiday in his own home, which we were so grateful for. Even better was that he got to be home for the mounds of snow that were dumped on us in Illinois. He had so much fun playing out in the snow runningContinue reading “The Final Round!”

Last week I got to come home for my usual “two days” as Rylan often refers to it. Mom, do I get my 2 days with you this week? He’ll ask me. Chris is off 2 days every week with his work schedule, and typically he will come up to the hospital and trade outContinue reading “Kids are Truly Resilient”

Things have gone much better so far this round. I almost don’t like saying it out loud, I find myself knocking on wood every time because I don’t want to jinx it. I looked back at my notes from last round though and he had began with the fevers and blood culture work ups beforeContinue reading “Trying to Enjoy Each Day”

We had another wonderful weekend at home. A lot of time and opportunities spent with family and friends, getting to play outside and enjoy the fresh air. Saturday we got to all be at Rylans last soccer game bright and early at 8:30am and it was a beautiful morning. Much warmer than the games wereContinue reading “The Show is Back on the Road”

We have been home for over a week now. Cade has been loving every minute. He has been running around the house playing with Rylan. Building blocks. Riding the gator and the Jeep outside. Running through the house playing “hunting” (thanks dad! Haha) Sometimes I get asked to be the deer. I get tired ofContinue reading “The Waiting Game”

A crappy week it was. Literally. Cade was already to and from the PICU and then positive for enterovirus. Then come Thursday we found out that to our complete shock and disbelief, he had tested positive for a GI bacteria called Colostridium Difficile. Aka as Cdiff. Due to the fevers that had started the weekContinue reading “A Wonderful End to a Crappy Week”