Author Archives: candocade

After my post Thursday we had to go to the funeral home. I just felt numb. But on our drive we noticed something that warmed our hearts. It was supposed to be another gloomy, rainy day. As it had been the last couple days, stormy and gray. Instead, we noticed that while the day hadContinue reading “Moving Forward”

This was the name of a Puravida bracelet my sister gave me in the beginning of Cades diagnosis. She gave it to me one day when she was visiting us inpatient at CHW. She explained that she really wanted one for pediatric cancer or brain tumor, but they didn’t make them for either and sheContinue reading “Never Give Up”

How do you prepare for the end? Prepare to say goodbye? That is something that we are trying to figure out right now. It’s hard enough to imagine for a loved one. A parent. An Aunt or Uncle. Grandparent. Friend. But how do you prepare yourself for that final goodbye when it is your sweet,Continue reading “Preparing For the End…”

As if life isn’t hard enough, things continue to get crazier and crazier in our world with COVID. I find more people than not are complaining about having their kids at home with this whole new e-learning school approach that was forced on to everyone and the social distancing and remaining in their homes isolatedContinue reading “Every Day is a Gift”

Yesterday we received the worst news imaginable. The worst case scenario that could have come out of this situation. The outcome that we were praying for anything but. Dr Tanaka called us to tell us that the biopsy results were done and that they show that the medulloblastoma is in Cades bones. He said thatContinue reading “A Nightmare Inside of a Nightmare”

Things were seemingly going as expected since my last update. Cade was seeing OT to help with some fine motor skills and as that was improving, I began to have some concerns for his legs and his walking. He complained about his knee hurting a lot, but not consistently. I know knee pain can comeContinue reading “Scary Turn of Events….”

Over the weekend Cade wasn’t appearing to be much better from a respiratory standpoint. I was starting to get worried that if he didn’t start to get better, his MRI Tuesday was going to get canceled again. I prayed a long time Sunday night. Prayed that he would get better so that this scan couldContinue reading “In God We Trust”

Well the cough that began Saturday ended up being yet another virus. Poor Cade cannot seem to catch a break, it has literally been one thing after another on top of another since Thanksgiving. Today was supposed to be his MRI, however his respiratory status wasn’t safe and his team of doctors was not safeContinue reading “MRI Canceled Today”

I am always utterly amazed at the amount of time that goes by when I finally take the time to sit down and get an update done. Almost 3 months again! Geesh. I wish I could say that it has been pretty status quo around here since the end of October, but unfortunately that hasContinue reading “I Hate Winter Time!”