Today is the big day. Cade went back in to the OR about 20-30 minutes ago. Getting out of his bed while he looked at me with a pouty lip, flushed cheeks, and tear glazed eyes was one of the hardest and scariest things I’ve ever done. He got a dose of versed before we left his PICU room. The versed was great, making him silly and happy. Bonking himself in head and squishing my face. As I laid next to him in his bed, I said- “Oh I love versed.” The nurse at the end of his bed laughed. It wasn’t until we had to leave him that he got the pout lip and tears that broke my heart and made me cry as he told us he didn’t want us to leave, please go with me he said. But he’s in excellent hands. And I assured him of that a few times. Reminded him that he had his Superman blanket and cape to make him strong, his froggie, and his monkey blanket, and that he was set! He didn’t have to be scared everyone’s going to help him and he will see us all in just a little bit. Thankfully he was calm as the bed disappeared down the hall and Chris and I waited to be directed to the next stop.
The throwing up has continued. And if that isn’t bad enough as it is, the decadron which is the steroid they have to give him makes him throw up. Almost instantly. The nurses are amazed by this and it breaks all of our hearts. But he needs it, it hopefully has been worth it and done it’s job to decrease the inflammation in his brain in preparation for today. Yesterday his nurse and I noticed on his way walking to the bath that his balance and gait seemed off a bit, like he was drunk or dizzy. We tried to get him to walk around the unit like he loves to do to see the trains and go to the play room, but he wouldn’t do it. He just wanted me to carry him everywhere. After a few attempts at this we both mentioned the bath incident that we hadn’t yet spoke of. He wasn’t wanting to walk because his legs felt funny and weren’t working like he was used to. When asked this, he confirmed this was why.
My thought was, what better time than now. The tumor is possibly getting worse. His symptoms are increasing. Surgery is tomorrow. Thank goodness, we need to get this tumor out!!
While I had to hold back the tears with all my might as we waited for them to wheel him off, as we walked to the waiting area o felt a sense of calm about me. I feel that God is here with me. Taking most of my fear and anxiety away for me. Letting me know it’s all going to be alright. I know that is in a very huge part due to the enormous and endless amount of love and prayers that are being sent our way. Sent to him and his doctors. We can’t thank everyone enough for this, and ask that you please continue to pray for him throughout today. The longest morning and day of our lives.
We will update more as soon as we learn anything. ❤️❤️🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Our Warrior Journey 